Tuesday, November 11, 2008

Toddler quotes

Experiencing the world with an inquisitive 2 year old is just fun!  Josiah has started a new phase... or I should say, a new phrase.


Every comment is followed by a "why?".  Why do I have to, why can't I, why won't you???  It's been pretty funny so far, but is really stretching our conversations to include many lengthy explanations.  I can now see the reason parents reply with a "Because I said so."

The other day he looked at me with a sweet little grin and asked, "Mommy, are you married"?  I told him that I was married to daddy!  He then took my face in his hands and announced, "no mommy, you're married to ME"!   

I didn't know whether to laugh at the funniness of his statement or cry from the sweetness.  That was a true mommy moment that I will never take for granted.

Abby has started PT with our local UCP chapter in Huntsville and has been challenged to a treadmill race.  It's actually only about a 0.5 mph stroll, but for her I'm sure it feels like she's climbed a mountain!  

It's a very neat contraption that she gets hooked into.  Our therapist is very capable and quick at getting her gear all connected.  Then she sits behind Abby and guides/manipulates her legs to complete a full stride with each step.  Patrick went with us today to observe and we both enjoyed getting to see Abby "standing" up straight and taking steps... even if it was with a lot of assistance.  She really looked like a 5 year old.

It is surprising to see what a champ she is in this new set up, holding her head up the whole time.  There is a little hair pulling and some moaning to protest, but for the most part I think it must feel good.  Step by step the therapist can feel her legs loosening and can actually tell that Abby is making effort to move her legs by the end.

Abby has been healthy for these past several weeks being at home.  I heard RSV is running rampant already in our area, so I'm relieved to have a better chance of dodging it this time.

Her seizures have improved too... of course mostly due to no illnesses!  The last 3-4 weeks she has averaged about 2-5 in a WEEK!  This is pretty good.  

Although today she has had 11 so far.  We are hoping this doesn't mean sickness is coming.
(scratch that.  She has a low grade temp now, 100.1)

She has been having full afternoons of fussing, moaning, arching and full on tantrums lately too.  It's difficult to describe, but it seems like it must be GI related.  Since starting the J-feeds she has developed some different symptoms.  Much like her reflux behavior, it seems to send her into intense moments (hours) of discomfort.  

I could go into more detail about what this looks like, how we treat it and what seems to help... but not today.

I'm really trying to lay it all down at the foot of our Heavenly Father, who is the only One knowing Abby's struggles intimately.  

We appreciate your prayers for Abby, especially with this issue.  After this past year we feel 'tested out'.  The GI doc seems to be done exploring reasons, so we seem stuck.  But I know this is where the Lord works best in me.  Stuck, discouraged, tired and without answers.

Waiting for Him to speak or move... or Both.